Just….no.

This lady sure is missing her books! Yes, I’m talking about myself. Just wanted to update you all on what’s been going on! I get a lot of questions and it’s easier to reply this way as I get worn out easily and don’t check my messages as often as I should!

My beautiful view…

I’ve been confined to bed for the most part. I’ve gone out of the house less than 10 times this year. Yes, a fourth of the year has gone by and I haven’t even left my home more than single digits. Yowza!!!

Good thing I love my cute home and my amazing family! ❤

I’ve been wearing a heart monitor for over 3 weeks now and have another week to go. I had an abnormal EKG and abnormal Echo, so I am waiting to see what this will produce. Fun times!

EDS (Ehlers-Danlos Syndrome) is known to have heart problems attached to it, so I’m not too surprised!

“Three heart problems associated with hypermobile Ehlers-Danlos syndromeinclude autonomic dysfunction, aortic root dilatation (enlargement of the blood vessel that distributes blood from the heart to the rest of the body), and mitral valve prolapse. About 1 in 3 people with hypermobile EDS have autonomic dysfunction.”

I also had some blood work done and we found a few concerns that we are looking into a bit further. (ie: more tests and more blood work)

MakeItStop

I still can’t read hardly at all due to the strain on my eyes and head. It’s terribly sad, let me just tell you! I am hoping we can get to the bottom of this and I can get back on track! It’s seriously gone from a Disney trip and my awesome vacation to meet a lot of you lovelies in August to not even being able to stand and make a sandwich for myself! I can’t even shower very often – meaning that I have to use those hospital wipes and dry shampoo!!

Barf.

Double Barf.

I appreciate your prayers and concerns. Unfortunately, it’s extremely overwhelming right now to have much company. (Yes, even as much as I love you all and miss you!!)

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9 Comments on “Just….no.

  1. I’m praying for you, dear one! I’m so sad to hear you are not feeling well. Sending love and hugs with prayers for comfort, healing, peace, and answers.

    Like

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