Just….no.

This lady sure is missing her books! Yes, I’m talking about myself. Just wanted to update you all on what’s been going on! I get a lot of questions and it’s easier to reply this way as I get worn out easily and don’t check my messages as often as I should!

My beautiful view…

I’ve been confined to bed for the most part. I’ve gone out of the house less than 10 times this year. Yes, a fourth of the year has gone by and I haven’t even left my home more than single digits. Yowza!!!

Good thing I love my cute home and my amazing family! ❤

I’ve been wearing a heart monitor for over 3 weeks now and have another week to go. I had an abnormal EKG and abnormal Echo, so I am waiting to see what this will produce. Fun times!

EDS (Ehlers-Danlos Syndrome) is known to have heart problems attached to it, so I’m not too surprised!

“Three heart problems associated with hypermobile Ehlers-Danlos syndromeinclude autonomic dysfunction, aortic root dilatation (enlargement of the blood vessel that distributes blood from the heart to the rest of the body), and mitral valve prolapse. About 1 in 3 people with hypermobile EDS have autonomic dysfunction.”

I also had some blood work done and we found a few concerns that we are looking into a bit further. (ie: more tests and more blood work)

MakeItStop

I still can’t read hardly at all due to the strain on my eyes and head. It’s terribly sad, let me just tell you! I am hoping we can get to the bottom of this and I can get back on track! It’s seriously gone from a Disney trip and my awesome vacation to meet a lot of you lovelies in August to not even being able to stand and make a sandwich for myself! I can’t even shower very often – meaning that I have to use those hospital wipes and dry shampoo!!

Barf.

Double Barf.

I appreciate your prayers and concerns. Unfortunately, it’s extremely overwhelming right now to have much company. (Yes, even as much as I love you all and miss you!!)

tumblr_m59ms6zuft1rxbzwdo1_500

Sand in My Sandwich (and Other Motherhood Messes I’m Learning to Love)

by Sarah Parshall Perry

What an important book! Let me tell you, this is such a big topic because it is something that so many people are dealing with. Marriage struggles, children with severe “disorders” and personal health problems. Sound familiar? Welcome to the modern mom’s life!

Sarah attacks this subject with a vigor and complete honesty. Her boys’ medical rap sheets include a diagnosis of severe autism, Asperger’s syndrome, OCD, among other things. While she takes us in the everyday life of a mom trying to understand her child, she does so with wit, passion and a deep love of God.

Please pick up a copy of this book. You might think twice before scowling at the family in the booth next to you as their child is crying, vomiting, screaming, etc… Bible verse after Bible verse, Sarah talks us through her growth. It’s such a beautiful picture. It brought tears to my eyes. As you know, I am someone that believes in transparency (thus the name of my blog). Sarah doesn’t hide a thing! She lays it out there so that God can be given all the glory and we can learn and grow from her life lessons.

Thank you, Revell, for a copy of this wonderful book! As always, this is my honest review. Here’s to many more!!


Now, for the fun stuff!!! balloonsSarah has offered to giveaway a SIGNED COPY of Sand in My Sandwich!

Just head on over to a Rafflecopter giveaway and get going on those entries! Remember, only 2 options are mandatory, the rest are just extras. All entries will be checked and any falsified will be disqualified.

For some more fun (Yes, it just keeps on coming!), head on over here and check out our awesome face-off!!

Couple of things! — (+ New Giveaways)

Hey!! Life sure has been crazy around here. I am just back from a trip up north to see my parents through a couple of big appointments. I’ve had a lot of my posts on timers, so I am sorry if you got a bunch at once, or if you had any problems.

Today is the last day you can enter to win The Darcy Brothers ebook! You don’t want to miss out!!! Just go to my page and look at the giveaways section. There are some new giveaways there too. Enter while you can!!

Thanks to those of you who have been praying for us and all the insanity going on with my family and everyone’s health. It’s been a pretty CRAZY week. As I was driving home today, I was listening to some TAY TAY. I noticed myself starting to worship. At first, I felt totally weird (once I realized what I was doing), but she was singing about this total gentleman that gave her chance after chance and was always there for her. I started laughing because, one, it was a little (lot) weird, but mostly because I thought it was pretty cool that my mind went straight to God when I heard the lyrics. He will be made to worship in all things, I suppose. He was that gentleman to me that changed my life.

So, there you have my most embarrassing secret of the week. Care to share your’s?

You know, health and stuff…

I’ve had a rough go of it lately. I just want you to know that I am so thankful for those of you that have been praying for me and sending me notes of encouragement. I have greatly needed your support.

https://s-media-cache-ak0.pinimg.com/236x/65/be/e6/65bee62b05fc354bf29e3c7d30151f8d.jpgIf you aren’t familiar with my health problems, you can read this post. For some reason, it has really accelerated over the last year and I have become a shell of who I used to be. I struggle to make it through each day. I am so thankful that God is in control. I am so thankful that he is sovereign enough to take care of everything around me while I try to find a balance of pain medicine and natural health supplements.

I would like to request prayers from my sweet friends, if you don’t mind. I could really use it. I love my life and my family and all that God has given me. I just wish I could enjoy them more. Instead, I am declining so quickly, it is hard to enjoy. If I didn’t have a God holding me, I wouldn’t have made it this far.

I cling to Scriptures that I know to be true. My God is truly faithful.

I have always loved this imagehttps://s-media-cache-ak0.pinimg.com/736x/d9/45/f2/d945f296acf35029c59fa148d6221921.jpg because it represents so much. It shows Him holding “me”. It shows the mallet in “my” hand that nailed Him to the cross because of my sin. It shows His great love and passion for “me”.  It also shows “my” weariness and weakness and how much I need Him to hold me.

I don’t want pity. I am happy and know that God chose this path for me to be brought the most glory. I am completely ok with that. I just would love the prayers and love so that I can feel encouraged. Even Paul had a “thorn in the flesh”, right? So, no worries on that account. Again, just pray for my spirits to be encouraged

Thanks guys (:

2 Week Break? Yes, Please!

IMG_0363

You may (or may not) have noticed that I have been on a bit of a sabbatical. I needed a couple of weeks of to deal with my ongoing health issues and try to relax. So, social media was first on my list to go.

To get caught up, we’ve had a busy 14 days since my last post. Dr appointments, tests and monitors. Fun! No really, lots of fun…My large child is now driving all over (interstates included). It makes is really nice when I am hurting. I love having teenage children. My amazing niece came over and we spent 24 hours power marathoning through the Twilight series and going to the theater to sit in the reclining chairs and watch another movie. That was fabulous.

As I sit here listening to my heart monitor beeping every couple of minutes, I think of how NOT far we’ve come. So many years of doctor appointments and tests. It’s insane. I feel like we gain no ground, you know. The whole, 3 steps forward, 2 steps back. I just don’t think we even have that high of a statistic.

I also realize that God is working through our family in such a big way. I am reminded of James 1:2-4 Consider it a sheer gift, friends, when tests and challenges come at you from all sides. You know that under pressure, your faith-life is forced into the open and shows its true colors. So don’t try to get out of anything prematurely. Let it do its work so you become mature and well-developed, not deficient in any way.”

Therein lies the trick:

Bring God glory.

Don’t try to get out of it prematurely.

Think of it as a gift.

My faith is showing its true colors.

Wow. Working on that. No need to ask God what He wants for me to be doing. That, right there, is enough to keep me busy for the rest of my life!!

tumblr_ls2pt6EGzT1qhmhdfo1_400